Hide and Go Seek

He's HOME!

He's finally home! And he's doing GREAT!Payton had to have a car seat check before he could leave. That's when they sit him in the car seat for 1 1/2 hrs. to make sure that he can breath ok in it. The picture above is the nurse and I trying to figure out how to get him in. We loved how he had his hands up at his head like that. It looks like he's really frustrated with us (which he probably was). The picture below is payton in his new car seat...he looks so small!

Here he is at home.
This picture looks like a where's baby kind of thing. We've got our own personal NICU right there in our front room. That o2 tank has a 50' tube on it, so we can walk pretty much anywhere in the house. We've got his diapers and his monitors sitting there too. He's been doing really well since he came home today. Hopefully the equipment will be short lived!

Finally at rest in his OWN home!

The Post You've All Been Waiting For

Payton comes home TOMORROW! With oxygen and monitors, but home none the less! Thank you for your prayers...the nurses have even commented that there must have been something more at work here these last few days as he has amazed us all!

Go Sox!

Thanks Grandma!

Update...again

Thank you so much for your prayers and fasting on behalf of our little man. He has passed "the test". He has amazed us all with his abilities this past weekend. We know there must be something more at work here than just this little fighter. He progressively got better all weekend, to the point that when the doctor came in on Saturday to see how he was doing, he did a happy dance. I was able to meet with the doctor yesterday and he said he's not doing the NJ tube (which I later learned has to be put in at Primary Children's and every time it gets pulled out, you have to go back there to get it fixed). Payton's desats are getting better everyday! The doctor is telling us a week or two depending on his desats and how comfortable I am with handling it at home.
This was SOOO cute. Chris was singing and talking to Payton and he was looking right at Chris the whole time!

This is Payton's lion. The nurses all like to come in and play with it!

Payton

So yesterday the doctor took Payton's feeding tube out...not necessarily because he was ready for that, but in hopes that it would help with the reflux. Payton is really having a hard time taking ALL his feedings by mouth. The doctor lowered his volume that he needed to take. He just doesn't have the energy to take everything by mouth. He had an increased amount of O2 desats yesterday. Today the doctor increased the amount of calories he's getting in hopes that it would give him more energy. They are giving him until Monday to get this going. If he can't handle it, they are going to put in another feeding tube that will go all the way down into his intestines and he'll come home with that. We really don't want to have to put that tube in as it will take a long time for him to get off of it, plus it will decrease his ability to do the oral feedings. We've really hit a huge wall for him to have to climb over. He's working really hard, but he's really struggling with this. He could sure use your prayers this weekend.