Update...again

Thank you so much for your prayers and fasting on behalf of our little man. He has passed "the test". He has amazed us all with his abilities this past weekend. We know there must be something more at work here than just this little fighter. He progressively got better all weekend, to the point that when the doctor came in on Saturday to see how he was doing, he did a happy dance. I was able to meet with the doctor yesterday and he said he's not doing the NJ tube (which I later learned has to be put in at Primary Children's and every time it gets pulled out, you have to go back there to get it fixed). Payton's desats are getting better everyday! The doctor is telling us a week or two depending on his desats and how comfortable I am with handling it at home.
This was SOOO cute. Chris was singing and talking to Payton and he was looking right at Chris the whole time!

This is Payton's lion. The nurses all like to come in and play with it!